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TOPIC: Peyronie's Disease & PMMA Journal

Peyronie's Disease & PMMA Journal 9 years 11 months ago #1282587486

Damn - today was quite a day. I was back not once but THREE times...They had some unexpected patients w/ issues so some of the timing was off and they couldn\'t fit everything into my first visit - but I also am a much more complicated case than any of us thought. And I am apparently horrible at massaging the thing - so going back a few times was good. When Wade did it - it felt like his finger / nail was going to go seriously poke through my shaft...! I can\'t do it that hard. It\'s actually a problem bc I cant push as hard as him - and it hurts like a bitch. There\'s like an innate switch saying \"do not do this to your Dick\". But, I already was getting a ridge on top - so he broke that up. Then they wanted me to go home and get a boner w viagra and come back after I did my own massage...so that wasn\'t easy - but when I came back, they wanted to evaluate if I needed more PMMA because a lot leaked out and moved. They normally don\'t put more in, but my anatomy isn\'t normal at this stage with what Peyronies (and the useless injectable treatments) did to my tissue.

I took the obligatory giant swollen bruised penis picture. I can post it later. I think I\'m at 5.5 EG but it\'s just water. I\'ve been at this size before due to Peyronie\'s treatments (usually full of saline) - so its not as awe inspiring to me (except peeing is a comedy - I have way too much penis now) - I just want the damn blood to stop - it\'s gross already. I am down an Inch in length bc my EQ sucks (even on viagra) and the whole thing is uncomfortable...but it should come back.

This is not an easy thing. I don\'t know where I got that impression, but maybe it\'s also harder in my case bc my anatomy is screwed up and it doesn\'t go as smoothly. In general, you really have to be prepared for a lot...cleaning lots of blood, aggressive massage, keeping stuff clean (in a hotel where the wash cloth and sheets were both stained nicely), stretching, taking the meds, etc... Every time I have surgery, I forget about what a headache it is.

My third trip back to Avanti was when dr. c stayed late to put in another CC in this weird void area i have right above my peyronie\'s scar - though we don\'t know how it\'s related since peyronie\'s is on a deeper level. Maybe having it for 4 years caused dermal issues. Then Wade and Mel tried to figure out wtf I did to my ESL 40 and finally gave up and gave me one of theirs. I swear I just tightened it... Wade put it on with some very specific wrap to keep the product from fleeing my Peyronie\'s scar area. And I suppose, even if it does, I\'ll just have to get that injected more in R2.

I just want to sleep for a week rt now...damn it\'s been a long two days.

It\'s been said on here a lot before - but Wade and Dr. C do really want good outcomes for their patients and really care what\'s going on with you. I didn\'t expect them to reset the whole procedure room, sterilize my penis area again, and start loading canulas for just ONE CC to even out that strange \"dip\" I have (in the pic and also something that they didn\'t like). And that was at the end of a day with multiple surprise patients. They could\'ve easily said \"can\'t fix it now - maybe round 2\" or whatever (and that might be the case honestly - we don\'t know), but they still tried...and with the complications, they weren\'t about to just say \"well, here\'s a silicone sleeve - have a good night\" - they had me come back post-Erection, and then reevaluate, etc...we did joke that I am a little bit of a science experiment, but Wade said plenty of people have come in after other procedures, so it\'s not always that easy.


24 hours after R1 26 cc 10% PMMA in 6 x4.25 penis. Pic is about 5 EL x 5.5 EG (estimated).


This is where the PMMA refuses to stay...and we\'ve had a lot of work getting it in there (till it oozes out the injection site) - so I got an extra cc today. I\'m already guessing R2 is going to address this area. We\'ll see how it goes.

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Peyronie's Disease & PMMA Journal 9 years 11 months ago #1282589011

Hi restoration,

Wow that is a long day. Your experience has been similar to my first round.

I feel bad for encouraging you that it would be easier. Perhaps less painful than plication but in your case as much of an ordeal.

The good points are:

1) its looking really good!

2) thank god you didn\'t get 30% given the issues

3) that bruising will be gone in a few days

4) wade was there to help out. he\'s be absent for a few patients recently with Christian helping out instead. Wade has much more experience.

The plication surgery takes months to recover properly. With this you\'ll be and running in no time.

You asked about what I used post care. Back then they didn\'t recommend anything. I just used my hands.

One mistake I made was to use the antiseptic gel as lubricant every time I massaged. It\'s slidy for a few minutes but then turns sticky and glue like. If you keep massaging when it\'s sticky (as I did) it will really aggravate the skin.

Ok good luck. I think it gets easier now and you can sleep forever with a bigger penis.

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Peyronie's Disease & PMMA Journal 9 years 11 months ago #1282589022

Oh and I went back to see wade the next next day too (2 days after procedure). A good idea if you\'re still in TJ and he will be there.

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Peyronie's Disease & PMMA Journal 9 years 11 months ago #1282602483

Letsgiveitago wrote: Hi restoration, Wow that is a long day. Your experience has been similar to my first round. I feel bad for encouraging you that it would be easier. Perhaps less painful than plication but in your case as much of an ordeal. The good points are: 1) its looking really good! 2) thank god you didn\'t get 30% given the issues 3) that bruising will be gone in a few days 4) wade was there to help out. he\'s be absent for a few patients recently with Christian helping out instead. Wade has much more experience. The plication surgery takes months to recover properly. With this you\'ll be and running in no time. You asked about what I used post care. Back then they didn\'t recommend anything. I just used my hands. One mistake I made was to use the antiseptic gel as lubricant every time I massaged. It\'s slidy for a few minutes but then turns sticky and glue like. If you keep massaging when it\'s sticky (as I did) it will really aggravate the skin. Ok good luck. I think it gets easier now and you can sleep forever with a bigger penis.


Thanks! Yes I am still trying to get a night w/ over 4 hrs...! This trip has been quite interetsing.

BTW I wasn\'t referencing you - about it being easy. Just like - when you read this board, you don\'t get a sense for how tiring and stressful this can be. And, also I have had a little bit of facial injections (tiny amounts) which are nothing. Maybe this hasn\'t been that stressful for the guys here & I\'m more high strung, who knows. I also had a harder case for them...even though Wade & Dr. C think its fine now. It was just hard at first...still looks weird - but wade got out the nodules (again) so I am gonna be ok I think - those weird folds should stay pressed down in the silicone sleeve and not form

That pic looks good - but that was the pic everyone posts like - hey my Dick is huuuuge! Then later it looked like this again on the left:




But it\'s a getting better now w stretching and it has to remain stretched and wade got the nodules out that you can\'t even see - and a lot of these folds are swelling & the result of letting it turtle. I just don\'t want tissue growing in those areas...which they don\'t think will happen now that it\'s flat in the sleeve. Also, if there is a ridge in there, they will take care of it in r2. It won\'t be too big anyway, we think - we are all glad I did not do 30%.

He\'s fine w/ 10. Yeah, I heard christian was doing stuff - I\'m glad wade was there bc he did a lot of work - and I mean a LOT. Plus, he\'s the one I talked to on the phone and emailed - so if it was just christian that would\'ve been weird.

Plication surgery sucks...I still have pain there sometimes. That was a month of healing but I was in my own home so it was a little easier. I also had my jaw cut open and screws put in - but again, got to go home! I think that makes a difference. I did the same thing u did with the antiseptic and they told me not to bc it will aggravate your skin (as you found out)... it\'s fine to put on the entry points though.

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Peyronie's Disease & PMMA Journal 9 years 11 months ago #1282603591

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Sorry it\'s been so stressful for you restoration. This procedure is unpredictable with some of us. So people come out with no issues whatsoever, then others have many aesthetic issues. I would just let it be now and hope for the best. Don\'t stress to much because there is nothing you can do now to change anything. I stressed everyday and it really got in the way of my personal and professional life. Be prepared for multiple more procedures to get where you want to be because this is going to be a evolving process. What you see now or in 6 weeks will not be the final product so try not to give yourself unnecessary grief. I\'m going in for a 3rd procedure and already saving for a 4th just to be safe. Best of luck to you and your penis.

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Peyronie's Disease & PMMA Journal 9 years 11 months ago #1282605539

Restoration is a much more favourable position than you though jimmy, as he only had 10%. It will make a huge difference, as any imperfections will be much easier to fix, as the tissue is less dense and there is simply less of it. At the end of the day all the the percentage is is the amount of PMMA per cc. Put simply you\'ve had 3 times as much PMMA injected, the rest of the solution reabsorbs. 90% of what restoration has in his penis up to now is simply a water based carrier and once that is fully absorbed, the collagen growth wont be as great or as dense as yours, so much easier to deal with if some aesthetic issues occur. At the moment he\'s up 1.25\" on his pre op stats. The chances are he\'ll lose over half that in the coming weeks and thus most of the more obvious issues will massively improve.

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Peyronie's Disease & PMMA Journal 9 years 11 months ago #1282616757

Yeah, the 5.5 is already gone for the most part...I was 5.25 w/ the sleeve over it last night, so that\'s already almost 5. I only measured twice in 4 days since these numbers aren\'t that meaningful. It was just curiosity.

A couple things are still annoying or on my mind...but for the most part, it\'s over with for now. If anyone has thoughts on this, I would really appreciate it - and hopefully it\'ll help others who read this journal.

- Still oozing... not really blood anymore - just clear liquid. They said not to use skin glue. It\'s just very annoying. 6 of 7 holes still open at 72h. There\'s an infection risk and it\'s uncomfortable to have to keep using gauze there constantly.

- Do I need to be in a 24 hour stretch for 6 weeks? I was thinking if I am not - will my penis shrink in length because the collagen that forms will form over a far smaller penis (like 3.5\") - and restrict the lengthening during Erection (which is what happened during my first Erection, I think). I wonder if this is why some guys loose length? Also, if I don\'t keep stretching, it might be lumpy since I have uneven anatomy on that side (in the pic above, which is a bad pic - but it\'s just how screwed up my skin is).

- I might have too much PMMA at the base, or maybe the base is just sore. If I didn\'t have that fat pad - I\'d have a lot more penis...and he injects the shaft into the fat pad. They kept telling me to lipo it... I am planning to lose weight, but I loose in areas like that last.

Jimmy - thanks - yeah you have a good point... what about the \"daily maintenance\" stuff... I would love to never look at the thing for 3 more months, but I think I have to keep stretching...right? Or am I making a bigger deal out of stretching than it is after 72h?

The product is virtually set...It\'s hard to tell what is there, but toward the base, I pressed my thumb in really hard and left a dent! Then, I moved it back - it was freaky - like clay under the skin, but only at the base. The other areas -wade kept saying \"keep the product even, see\" and I was like - what product?? But at the base, I see it. He just has a lot more experience & to me it\'s all watery and ambiguous.

The purple bruising from the pic above is gone..I have some red streaks in the crevice areas... but the color is almost normal - that was fast. I took advil maybe 1-2 times a day at the normal dose. I think the cortisone shot they give might have helped.

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Peyronie's Disease & PMMA Journal 9 years 11 months ago #1282624150

@Restoration

The oozing is normal, just be sure to keep the area clean and sterile. It wasn\'t unusual to take 3-5 days for every single entry point to fully heal, and you should encourage the oozing (followed with the appropriate cleaning). To be honest, I think one reason I had Nodule issues was from denying the ooze from those entry points allowing them to accumulate and ultimately become a Nodule.

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Peyronie's Disease & PMMA Journal 9 years 11 months ago #1282624982

Thanks SO . It\'s finally stopping - the silicone sleeve sort of prevents it from oozing fully...sorta...it still comes out a little. They told me not to block it or I\'d get a Nodule of PMMA there. Were you able to get rid of the nodules?

What do you think about stretching after the 72h is up? I just think if i leave it Flaccid, I could loose length and/or the collagen might grow in a restricted way. It\'s just very annoying to wear a stretching device all day and night for 6 weeks. It falls off constantly and it\'s hard to put on...and not really comfortable.

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Peyronie's Disease & PMMA Journal 9 years 11 months ago #1282657127

Day 7

Things are looking better. It looks like a normal penis again pretty much. These are semi-hard pics. I was able to get to 6\" hard though, so that\'s good. Girth is up 1/2\" - so I don\'t know what to make of that right now - it doesn\'t really mean anything at a week. I assume it will dissipate more and come back. Who knows.

The left side is a challenge here... as you have seen from previous photos. It\'s looking less full now too - but we\'ll see what happens when the growth kick in. I\'m glad it\'s 10% because anatomically, I am going to have some irregularities.

The skin is massively improved w/ aveeno - which goes back to looking bad if it dries out again. I finally could use lotion since the bleeding stopped.

Because of the skin irritation, I am not wearing the silicone sleeve and i am using a stretcher during the day as much as I can. At night, it just does its own thing.



Thank you everyone for all of your help before, during, and after this! It was nuts - and it\'s not over yet - but I really appreciate everyone who took the time to read and post stuff...and hopefully this will benefit other people who have similar goals & issues.

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Peyronie's Disease & PMMA Journal 9 years 11 months ago #1282665960

Looks amazing!

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Peyronie's Disease & PMMA Journal 9 years 11 months ago #1282667397

I\'m glad the skin issues resolved with aveeno. It looks like a great result so far!

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Peyronie's Disease & PMMA Journal 9 years 11 months ago #1282669316

Agree with the guys above me, looking much better!

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Peyronie's Disease & PMMA Journal 9 years 11 months ago #1282670059

Thanks! Yeah losing that surface swelling helped a lot with the unevenness... i\'m really glad that does not appear to be deeper in the fascia where the PMMA is. I think my skin just got irritated and swollen. They definitely had a harder case on their hands with me, which I didn\'t totally expect since Miracle8 had it easy - but I think I have undergone some more treatments than he did which screwed up my skin. Most of these were from 2010-2012 - but it appears they permanently changed some things. My 2013 deglove scar isn\'t the least bit irritated, so it\'s just strange. I thought those old treatments would have no impact by now. I hope the PMMA doesn\'t stick to the scar and make it raised or something... it wanted to stick on one part of the scar & wade pushed it out - and some came back & I pushed it back out a little, but it was hard to do. But anyway - right now it\'s still larger than when I started in Girth - which has got to just be swelling bc of all that trauma. It still feels sore too - it\'ll be interesting to see in a month or two.

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Peyronie's Disease & PMMA Journal 9 years 11 months ago #1282739140

So far I have gained 1/2\" in the Erect state...not sure how permanent it is going to be. It\'s crazy how much a 1/2\" looks like in real life...it\'s so much better. I have some empty areas and nodules I\'ll point out in the next post. (It looks thicker after surgery because it\'s not curved so drastically - and also I think it\'s more zoomed in)

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