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TOPIC: Peyronie's Disease & PMMA Journal

Peyronie's Disease & PMMA Journal 9 years 10 months ago #1285629961

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That\'s a perfect comparison, steady gains. I can see that your penis was a bit uneven even before PMMA, does the lumpiness (sorry for the choice of words) feels too different?

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Peyronie's Disease & PMMA Journal 9 years 10 months ago #1285632367

Did you mean, the little bumps? Those are sebaceous glands & they\'re much less visible now... if that\'s what you were asking about. You can still see them, but it\'s a lot less. There is no known \"treatment\" for those - though many guys hate them, they are just part of the skin. PMMA thickened the area so the oil glands could sink lower down rather than rise up and make those little bumps.

It was a bit uneven after round 1 but after 2 months after round 2, it evened out. I think it\'s important to wait about 8 weeks to see if things will even out - maybe even longer. Miracle said it\'ll change up to 9 months, and I believe him.

It feels the same, but the skin doesn\'t move as easily bc it is thicker...I never used lube before this procedure (when alone), but now I\'m more likely to use it.

Oh if you mean the shape - yeah it\'s never been that even since I got peyronies...if you look back in my log, you can see where I REALLY started from - during the acute stage of the disease...it\'s come a long way from that. Guys vary tremendously on this though - with most having asymmetry to some extent & veins rarely are symmetrical either. I literally have tissue that\'s stitched together inside my penis...vertically and a small bit horizontally - to make it look more even. My curve was up and left, so fixing this left some unevenness.

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Peyronie's Disease & PMMA Journal 9 years 10 months ago #1285632971

Restoration wrote: Thanks Bruno. I wish I had your gains! HA.

Here\'s an updated side-by-side progress pic. My camera focused on the carpet in the last pic..so the skin looks smoother than it is. These pics are not easy to get right, but at least the general changes are visible & easier to read than that chart.


I dunno why, each one look like totally different dicks than the other except for the distinguishing marks lol. The first two look somewhat similar but I swear if you didn\'t have those super noticeable marks I would think I was looking at completely different penises. Congratulations on your gains!

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Peyronie's Disease & PMMA Journal 9 years 10 months ago #1285713716

Thanks - HA yeah part of it is real change, some of it is lighting/camera (even though it\'s in the same spot with my same camera/phone - it sometimes doesn\'t come out that equal). Compared to a year ago, it\'s night and day...thank god. a year ago I was just starting recovery from surgery.

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Peyronie's Disease & PMMA Journal 9 years 7 months ago #1286659464

Round 3

I had 15 cc 30% Linnea Safe and 2-3 cc 10% Linnea Safe. Going in, I was:

6.5 BPEL
5 Base EG
4.75 MSEG
4.5 Neck EG

Here are some notes from Dr. C and about this round:

- Dr C prefers higher concentration and lower volume. He said the study of the 750 people showed this to give the best result with least risk.
- I talked to Dr. C for about 20 min before, going over pics and goals. The procedure took about 60-90 min.
- I asked if I could have fewer incisions because I leaked out of the top left so much & it left it as a low spot, and he said he\'d look at it in person. I ended up with more than 6, but he used needles in certain areas. I think I have about 9 open spots. Some of this was to even things out, I think.
- For example, he camouflaged the ridge on my circ scar. We\'ll have to see if that holds up after the growth phase.
- Dr. C said that PMMA grows for 6 weeks after injection. This has been an open question for a while, but it sounded pretty definitive from him. This is why they say to stretch for 6 weeks, but I didn\'t realize PMMA products grow for that long. I don\'t think I grew past 3-4 weeks, but the swelling/growth tradeoff is what makes that unclear to most of us, I guess.
- I talked about my concern with the step-off at the circ scar (from 30 to 10 percent growth), and I think he addressed it by making a few small incisions up there and using a few different needles (he didn\'t use the cannula/gun for the whole thing). We\'ll see in a few weeks. Since I only got 15cc in the shaft, maybe it won\'t be that drastic.
- He said there are some average sized penises that can take 25cc and some huge penises that can only take 18 cc - it\'s not really a size thing. Also, each round can make it harder. He injects under the existing fibrosis, which should camouflage lumps, but it makes it harder to massage, I think.
- He said Linnea Safe and Metacrill are the same, but anecdotally he has seen a few better results with LS. However, this is not meant to be a scientific answer. He did say it is easier to inject, though.
- They don\'t do the cortisone shot anymore. Apparently, one patient refused it - and that patient had no swelling. So, slowly he started giving the option of no cortisone and monitoring closely. Now, he stopped altogether. He thinks that might have prevented growth as well in some people. Advil, on the other hand, he thinks is fine. I didn\'t take it this round.
- Dr. C will now do microdroplets of silicone, and he has a dozen patients who had this done. He said he\'s tracking them very closely and isn\'t really advertising it. He said to just do my research & think about it. He says it works very well in the neck of the penis - even better than PMMA. But, he\'s not pushing it at all.


- Wade wasn\'t there, but Christian filled in. A female doctor was there too, but I forgot her name. Mel isn\'t there anymore.


Questions

- What do you think that lump is on the underside? A hematoma? It\'s really strange... I am going to ask Wade today - and maybe Dr. C if I see him. It was there immediately after the procedure. I don\'t think it is the product.

- Do you think it\'s strange that it tapers in at the base, Flaccid, but when it is Erect, the base is full? It was pretty even before in the Flaccid state, but thicker at the base.

- Has anyone lost this much length the next day? Almost 2 inches of my Erection length are gone...I think I lost 1/2 Inch the first round...

Don\'t do this (or be careful)

- I slept with my stretcher on (the one in the pics) - and I slept on my back (which I hate). I woke up with an Erection and the base of the stretcher STUCK on the base of my shaft...and it was acting like a Cock ring, keeping the blood in. I couldn\'t get it off...took 20 minutes. Then, I took a full hour to massage out the dent that it left on top. Damn that was not pleasant at 3 am.

Random Notes

- I am using a VPN because I want to watch HBO. I just got one for $10 since the free ones are useless. You can\'t watch Xfinity on demand or HBO-Go from mexico, but you can watch Netflix (except some shows are different).

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Peyronie's Disease & PMMA Journal 9 years 7 months ago #1286660546

Looks a lot fatter. I don\'t see how it\'s possible to lose that much length. That makes no sense. The lump could be fluid, but I\'ve seen several cases (including mine) where it\'s product migration or settling. In either case it will probably reduce somewhat in size, but remain there permanently.

Can you explain what you mean by \"he camouflaged the ridge on my circ scar\"? Also, how much was the total for your round 3?

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Peyronie's Disease & PMMA Journal 9 years 7 months ago #1286661779

Hey Restoration, Idk if you already explained some of it here, but could you tel me about your peyronies? How it feels, if it hurts and describe the pain? (I dont want to be an ass or anything, its just that i have had an injurie about 4 years ago, when i tried Jelqing, and have although I dont have indentations, or a real curve, I do feel pain - mostly flacid and after an Erection, difuse, sharp - and with 2 doppler ultrasounds, no one could really find any plaques or such, so i dont have a closed diagnostic) It would help a lot!

Btw, your progress is coming real nice!

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Peyronie's Disease & PMMA Journal 9 years 7 months ago #1286661868

slk20003 wrote: Looks a lot fatter. I don\'t see how it\'s possible to lose that much length. That makes no sense. The lump could be fluid, but I\'ve seen several cases (including mine) where it\'s product migration or settling. In either case it will probably reduce somewhat in size, but remain there permanently.

Can you explain what you mean by \"he camouflaged the ridge on my circ scar\"? Also, how much was the total for your round 3?


I think he meant that he put product above it and below it - and also broke it up a little. He didn\'t really explain in detail...but that was my understanding. Total was 18ccs, 15cc 30% the rest were 10.

I assume the length will come back. Wade said it\'s normal not to be able to get fully Erect for a few days. This is just more than I am used to. Some guys did lose 1/2\" or so...for a while I think.

Wade & Dr c now think that lump was something I had going in & I didn\'t notice it - but now it became mobile or something. It\'s not hard.. just strange...and it has a little \"arm \" coming off of it.

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Peyronie's Disease & PMMA Journal 9 years 7 months ago #1286663801

adc - I had Peyronies in 2010 and plication surgery in 2013, so I don\'t technically have it anymore - though plication is just a cosmetic surgery - really...so maybe I sort of still have it. Some of the curve came back after surgery (30 degrees, roughly - down from 65). I don\'t have pain from Peyronies anymore. That was just in the first year. I had several palpable plaques. I think, earlier in this log, I talk more about the disorder. You might also want to check out peyroniesforum.net.

If you just have pain without curvature or plaque, it\'s probably something else. If I were a doctor, I\'d give you a prescription for Pentoxifylline since it treats peyronies - and also pain in the lower extremities. It has few side effects. If it doesn\'t work in 2-3 months, then you can just stop. Nothing bad will happen either way. Some doctors inject steroids into the base of the penis for peyronies pain, but I don\'t think they would do that without you demonstrating a plaque or curve.

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Peyronie's Disease & PMMA Journal 9 years 7 months ago #1286665311

A female doc was in the room with you? Or just at the clinic?

Also Mel is gone? Like no longer works there?

Interesting that Wade wasn\'t there and Christian filled in... I had that as well on my last round (only Mel was there too).

Thanks for your update on the team and current procedure methods! Happy healing man!

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Peyronie's Disease & PMMA Journal 9 years 7 months ago #1286665403

Yea, a female doc was in the room doing Mel\'s role of refilling the cannulas and tracking the PMMA. They said Mel moved on, so I guess he left the clinic. I suppose it might be awkward for a female doctor to be there for some guys, so I noticed she really stayed out of the way - I barely saw her. She mostly had her back to me and was looking at the cannulas. I tend to look at the ceiling or out the window anyway.

Glad the update was informative! I thought it answered a lot of stuff discussed for a while here... or at least going through my own head.

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Peyronie's Disease & PMMA Journal 9 years 7 months ago #1286665455

Yeah I wouldn\'t care about a female being there. But you are right, I am sure some guys would mind. Too bad about Mel, he was quiet but I always found he had a good sense of humour and added to the \"calm\" of the room haha.

Yeah you definitely answered a lot of questions guys here have been having lately. (LS vs Metacrill, CC volumes etc.)

Cool about the micro-droplet thing... I wonder if this will be a future solution to the ridge scenarios.

Also, that lump you are saying is now mobile, it might get \"stuck back in\" once the PMMA settles in and collagen forms etc. I have found with my later rounds I will always come out with areas that act a little different for like a week or 2 post op (like feeling like harder areas in the skin, or what seems like new lumps) but they usually die down once things settle in. At least in my experience.

Interesting about the Large Volume vs Lower Volume. When you went in, were you hoping for a full all out type round?

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Peyronie's Disease & PMMA Journal 9 years 7 months ago #1286672836

Thanks for letting me know... hopefully this lump will go down. The middle of my shaft is a lot harder too - wade keeps trying to push that down to the base, and it works...and two hours later it\'s hard again. I got it softer too on my own, but my skin is starting to get irritated.

I was hoping just to get to 5.25 or so - around 1/2\" ...mostly as my last round with the least aesthetic complications. Since 17cc 30% metacrill only gave me 1/4\", I thought I wanted more, but Dr. C said it\'s better to do less in my case. Maybe without the steroid shot and with the Linnea Safe brand, I might get more growth than last time. I\'d hate to have a $10k penis for like 1/2\" from the start. It\'s pretty damn big right now, though. 5.75 MSEG (well, big for me). 5\" FG, with the swelling.

Day 2

I am back to 5.5 EL, so just 1/2 Inch still held back mostly due to swelling. I\'m pretty bruised and swollen. I am not sure if I should as them to address the underside of my glans or not. Given that this is permanent, I am tempted to - but I\'m not sure - because the swelling distorts everything.

The top view is pretty large - though obviously swollen. I just think it\'s interesting to document it to see how it changes.


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Peyronie's Disease & PMMA Journal 9 years 7 months ago #1286678138

So, my swelling is really bad. It is 5.5\" Flaccid (Girth). It was 4\" Flaccid Girth before this round.

Last time, it only swelled up maybe 1/2\" to 1\" and was nearly gone by now.

I wonder if this is a good (?) sign that my body is responding. Last time, I barely had any swelling.

I think this is going to make it impossible to do the touch up tomorrow, though...damnit...

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Peyronie's Disease & PMMA Journal 9 years 7 months ago #1286695802

Hey Restoration,

How\'s the swelling going? Mine seems to be all concetrated right behind the glands...kinda makes it hard to tell if there\'s product there or just fluids.

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