TOPIC: Update on my surgical removal

He is trying to get it FDA approved. It’s a PMMA/CMC combo. This was part of the trial. 20 of us and I know the two of us had this reaction. The original two silicone injections. I did not have major issues. It was this last PMMA/CMC that created 30+ nodules

I hate to be the one to tell you this but no, he is not. He (and all the other silicone injectors) knows the FDA would never approve such a concoction. He has his own "compounding pharmacy" mix it up in large quantities in advance (which is also illegal) and then injects it into whomever will let him and laughs all the way to the bank. Furthermore, CMC or carboxymethylcellulose is a thickening agent. PMMA does not need a thickening agent. And it would make sense that you didn't have any issues in the beginning because it takes a while for the silicone oil to start to spread and cause these problems. That's why I said it looks great until it doesn't.

I'm so sorry but he has been lying to everyone so he doesn't get caught. Again, I wouldn't wish this on my worst enemy and I'm so sorry you were lied to and made to believe it was safe. I'm not here to make you feel stupid or cause anyone unnecessary alarm or detract from our competitors or make a sale. I have seen firsthand the irreparable damage being done and it has got to stop. Too many people's lives have been completely ruined with more on the way. Again, I am so so sorry, but I am here to help prevent this from happening to other men and I am here to help you if you want. Know that you will get through this but it's going to be a very, very long journey and frankly not an easy road ahead, but you've got this. Stay strong.

FDA approval isn't just filling out a form and getting 20 patients in for procedures. It's a tedious, expensive, and long-term process; if what you were saying was true (not suggesting you're lying, but that Dellinger most likely is), then at BEST you were being used as guinea pig without being told so. Except I don't think that's the case. My hunch (while I cannot prove it yet) is that this was a marketing ploy, which if true I would imagine is criminal because it's false advertisement under the guise of FDA Trials.

Your frustrations should not be with Dr. Kansas, those pictures there are a result of the incompetence of one Dr. Dellinger and the "Bane of Injectable Phalloplasty," Mr. Loria for having legitimized silicone's use again in the penis (when it's long been recognized as a poor filler in high volume).

Edit: Looks like Rejuvall beat me to it

Not sure what he was marketing because we both got it for free. The other guy is a acquaintance of mine that I referred for this trial. But my faith in the medical profession is a little low today so it doesn’t surprise me if he would lie. He told me all of this was reversible using Kenalog as well. Up until the Time I was actually asking to use it to get rid of all the nodules. Then suddenly that wasn’t an option. Imagine that.

atxguy wrote: Not sure what he was marketing because we both got it for free. The other guy is a acquaintance of mine that I referred for this trial. But my faith in the medical profession is a little low today so it doesn’t surprise me if he would lie. He told me all of this was reversible using Kenalog as well. Up until the Time I was actually asking to use it to get rid of all the nodules. Then suddenly that wasn’t an option. Imagine that.

"All reversible via Kenalog?? I wish Dr. Dellinger had been more honest, or at the least very clear. Perhaps Rejuvall can correct me, but Kenalog is a very strong corticosteroid used to help against inflammation when dealing with things like granulomas... it doesn't "reverse" or "dissolve" fillers in any way that would be safe (as far as I know), and it's usually used sparingly because too much of it can actually damage tissue.

The "no-cost" approach is strange; if that's the case, perhaps he's testing it out for himself to see if all the allegations against it are valid, and whether it's worth his time (or liability) to use it (much less advertise it). I just find the FDA-trial thing to be "iffy" when you consider what that all entails.

"All reversible via Kenalog?? I wish he had been more honest, or at the least very clear. Perhaps Rejuvall can correct me, but Kenalog is a very strong corticosteroid used to help against inflammation when dealing with things like granulomas... it doesn't "reverse" or "dissolve" fillers in any way that would be safe (as far as I know), and it's usually used sparingly because too much of it can actually damage tissue.

You are correct. Kenalog can be used to soften PMMA but it does not dissolve or reverse any fillers.

When I decided to use the Kenalog, he suddenly said it wouldn't work on these nodules. He had used it 2-3 times (1-2 on the first silicone injections and 1 on the PMMA/CMC injections. So a layperson would see that as it working to get rid of these. Then to hear it doesn't work....smh.

I just saw the photos and I can understand why it was/is hard for you to see the end of the tunnel. I feel for you brother.

Is the skin they added eventually going to fill all those gaps? Or will it eventually heal to a more uniform shape?

No skin has been added.
I spoke with him today and he said he would’ve done a skin graft, but he had not gotten consent and we had not talked about it before the surgery.
He said that that’s really the most likely option in six months if it doesn’t turn out the way I want
Now I’m trying to find photos online of penises that have skin graphs. I’ve seen a few, but they are immediately after surgery. I want to see some six months after surgery, etc..
I may make a separate post elsewhere on this page to see if anyone has that kind of material.

Sorry, forgot to answer your other question. He believes it will fill in, but it will take months.
I am waiting to hear back if I’m still going to have hamburger meat for a Dick before a skin grows in or will skin grow in and then it will fill in? I really don’t wanna be looking at hamburger meat for the next few months. I would love to be able to get rid of wearing this bandage

Did your acquaintance get the trial filler also?
If so did he have bumps/nodules also?

Yes, he did. And all of it settled at the base. He was a little below average in length and he basically has a big ring at the bottom. It did make him significantly thicker but the last time I saw him, it was migrating. I don’t know how it is now.

No real changes in my physical status. i think it looks worse but understand it's part of the healing process. My doc is hesitant also taking a wait and see approach vs a positive one he once had. I'm having "Dick moments" where I see it or realize what has happened to it and have a mini break down. Then quickly it's gone. Exhausting and I'm ready for May/June when we can look at next steps.

I did file a FDA complaint about the supposed trial that Dellinger was doing. At least there will be a record and maybe they will do an inquiry out to him.

I'm not real hopeful this will turn out well w/o a graft or some other surgical intervention. Maybe filler to fill in the low spots which are huge still. Everyone says they will fill in but I still can't see them filling in enough on their own to be normal. Not the most optimistic at the moment. Luckily, I can ignore it (denial??) for a while until I have a moment.

Update. Surgery to remove material was January 10. So we are a guess about five weeks out.
Still granulation is happening, but I still don’t see how it’s gonna fill in that much. My Urologist who did the surgery. Put me on 2.5 mg of Cialis a day, and mentioned that “soon “he will ask me to pump and use trim mix. Presumably, to get blood flow and a stretch to get the 2 inches I’ve lost back. I say presumably because Again, I don’t get enough information.
So I’ve been up since 2 o’clock, it’s now 415 CST. This issue keeps me awake every night. So I decided to shower and re-wrap instead of waiting till seven. And I thought let’s see what it looks like Erect. He said erections were our friend right now. And when I’ve gotten Erection so far, they’ve been at night or spontaneously during the day. It’s like being 15 again. But it’s always been wrapped. So today I saw it unwrapped and hard for the first time.
Very traumatizing again. Much worse than I expected. I know everyone will say not to focus on it and give it more time and I am working very hard to have that perspective, but to see a once beautiful Dick turned into something hideous, something that a dog chewed up is almost unbearable. I sent pictures to the doctor.
I have a couple of consultations with Urologist here in Austin and also the original Urologist at the same practice as my current doc. That doctor doesn’t do TRT so he referred me to Kansas. I trust the other doctor so I thought I would get a consultation with him
I’m just needing hope and options. If I have options then it feels like even months from now it will be OK. But for the doctor to just keep saying, let’s wait and see is not good enough. My trust in medical professionals is very low at the moment.
The other two docs are at different practices. One of them is the Urologist that Dr. Dellinger said would be with him when he did the surgery himself. I had an appointment with him months ago. It took two months to get the appointment and two days before that appointment. He canceled it and tried to set me up with a PA. So I did not go. They were able to squeeze me in next week.
The FDA has received my complaint about Dellinger’s proprietary mix of CMC and PMMA. I have not heard anything else.

I read your story, I'm very sorry for how things went. I just wanted to tell you to be very patient, I can understand how you feel, I had an infection from my third round of PMMA and after 5 months I'm still fighting, I think a lot about surgical Removal, I often have burning skin and redness and the dilation of the skin during the infection looks similar to the photo of your penis before your Removal. I'm starting to get small subcutaneous granulomas and I think the situation is getting worse, I have excessive weight, a mix of lymphatic fluid that has never gone away and fibrotic tissue. I am considering surgical Removal and will follow your story to see how your situation evolves. Do everything to be strong and try to see positive, I have had problems with severe depression and I can't see the light at the end of the tunnel, we knew the risks beforehand but until the problems arrive we feel omnipotent. I curse the day I decided to do a third round I had a perfect penis as you curse the day you trusted Dr.Dellinger.