TOPIC: Peyronie's Disease... My experience

I\'d really appreciate more information... PM sent a couple days ago to M7... thank you

@hope4more

If you feel comfortable discussing your situation openly, I would prefer to. I say this because at present, I am consoling/advising/counseling so many men. I have a number of questions for you and would like to openly discuss your affliction. I would also like your permission to re-post your PM\'s to me so that others may benefit. You definitely have peyronie\'s. Having a woman on top and coming down on an Erect penis causing trauma is the #1 way peyronie\'s develops. Bar none. It is a risky position as women have a tendency to get wild and all it takes is one occurrence to do life long damage. Also, after 7 years, you are most assuredly in what is referred to as a \"chronic\" or \"stabilized\" state. Meaning, it will not get better on it\'s own. At this point, Vitamin E and other modalities are pointless. Mild traction combined with intralesional injectable collagenase may prove worthwhile and in my opinion is the best non surgical treatment.
If procuring Xiaflex (injectable collagenase) off label proves difficult or impossible, some men have had good results with verapamil (a calcium channel blocker) injections, a prescription for Pentoxifylline (improved blood flow) combined with mild traction. I stress the word mild. Traction would only be of benefit after having the injections and pentox meds. Attempting traction at present will likely worsen your peyronie\'s as it causes micro-tears/trauma to the tunic.
The hinge-effect is difficult to treat. Vacuum therapy will also be of benefit but I stress, only at low pressures and only after the aforementioned injections/pentox meds. I recommend the Somaerect. It is a high quality pump and has 3 different sized chambers/tubes and would prove very useful. I own one. It is expensive but worth it. If after trying the above recommendations for 6 months, you see no improvement, I recommend surgery. I feel confident that the above treatment protocol would be highly effective in your case. Especially the combination therapy involving the injection/pentox/vacuum. If you elect to go this route, I will walk you through the best regimen. Best of luck hope4more. You are in my prayers.

***To all that have concerns regarding existing penile curvature or peyronie\'s.***

Having PMMA or any other allograft/xenograft etc. will reduce the number of available/effective treatment options for this condition. Please consult a Urologist before undertaking such a life changing decision. We are all anxious to have our goals realized. Please don\'t make a mistake in haste and lessen your chances of true phallic bliss. Rome wasn\'t built in a day!

Because I care,

Miracle7

Here is a PM I recently sent to a fellow that I thought I\'d share with the forum.' I have not included any personal information as to violate his privacy.

I am saddened by your apparently botched Girth augmentation.' Removing the implant is a big decision.' Dr. Gary Alter is a fine surgeon in my opinion and will serve you well.' I do not advocate/encourage/condone manual penis enlargement.' There is a high risk of injury.' You are likely to experience contraction and possibly scarring from the procedure to remove the implant.' The penis is a marvelous appendage; of that there is no doubt.' It is also the only one you will ever get.' I can help you recover from your operation but cannot and will not advise you on how to mutilate your penis.' Traction has it\'s place when performed correctly and under the supervision of a qualified medical professional.' Recklessly Hanging weights from one\'s shaft in a frail attempt to gain an Inch is absurd.' I wish you the best of luck with whatever path you decide to take.' I suggest you weigh heavily any choice you make from this point forward.' I am here to help you if you call.

@M7

Thanks so much for your feedback & kindness... I\'d be happy to keep all this stuff about my peyronies on this thread... no problem... Why do you say the hinge-effect is difficult to treat...?? I\'m anxious to try Xiaflex (or injectable collagenase) Verapamil (a calcium channel blocker) injections, a prescription for Pentoxifylline (improved blood flow) combined with mild traction First and then use the Somaerect or can I start off right away with the injections and gentle Somaerect sessions....?? Thanks again

You\'re welcome friend. It is perfectly fine to commence using the Somaerect VED in conjunction with intralesional injections (into) or iontophoresis (over) the fibrous plaque with collagenase, verapamil or dexamethasone. A combination therapy is usually best. Try iontophoresis first with verapamil and dexamethasone. If no progress is made, you could then try injections. See if you can obtain a script for pentoxifylline, start iontophoresis, then use the Somaerect STF. You should see marked improvement with this protocol. Progress will likely be slow and treatment is not cheap. It is much more affordable than surgery. It will take some time. Be patient. You could very well avoid the need for surgery. Keep me posted whether by this thread, or by PM. If you would like, I am willing to share my cell phone number with you. I\'ll be with you every step of the way. I\'m on my iPad and exhausted but will be back tomorrow. Sleep well my friend.

I\'m wondering if surgery could actually make the condition worse...? or shorten me even more...? I\'ll be visiting with my Urologist next week, discussing options... I have more than one Urologist... The one I\'ve been going to for a long time is a very conservations Dr and pretty much takes the stance of: \"You should just suck it up and learn to live with it because all those so called treatments out there are just a bunch of hooey\"....!! He seems to think Peyronies is basically \"untreatable\"....

I want to say thanks again for all the wonderful information on peyronies... especially about the somaerect device / intra-lesional injections... im very curious -- in termes of effectivness of treatment -- is the somaerect / injections actually the preferrable treatment over surgery..? and does the surgery route pose any risks not present with the somaerect / injections..? I\'m asking as I wouldnt want to have surgery performed and actually cause a \"worsening\" of my condition... However, if surgery -- performed correctly & by a renowned expert\" -- is the best way to hopefully restore my original form & length, then I\'ll definitely consult with a urological peyronies specialist...

Who are some recommended surgeons in the Peyronies area...?? This would be of a great help to me... I know Elist gets allot of negative posts on here regarding his penile implant... However, I am in NO WAY considering the implant and have heard and read that he is also known for his surgical treatment of Peyronies... Has anyone out there their specific peyronies treated via surgery with Elist... OR -- Does ANYONE OUT THERE know of anyone whos had peyronies corrective surgery by Elist....?? Who are some other Peyronies surgical experts (in US & Abroad)..... location unimportant at this point... it would be nice to have them stateside but that is not critical.... I just want to talk with at least 3 of the very, very best peyronies surgical experts on the planet...

Thanks very much all...

@hopeformore

I can recommend several excellent surgeons here in the USA. Dr. Grossman was trained by my surgeon to utilize geometrical pinciples to correct the defect of the tunica albuginea. I highly recommend you try the VED and iontophoresis protocol first prior to surgery. There is a risk of de novo ED with grafting surgery. This risk is minimized by choosing a surgeon with extensive experience and expertise in dissection of the neurovascular bundle and s in avoiding dorsal nerve trauma.

1. Dr. Tom Lue
2. Dr. Fred Grossman
3. Dr. Harold Reed

I met with a very experienced surgeon today. (Elist).. He diagnosed me with a well healed penile fracture.... NOT naturally occurring Peyronies... He says there is a difference.. IE -- my PF manifests in a manner similar to peyronies but is not actually peyronies... He diagnosed me as very stable and said in NO WAY to consider surgery... and to only consider Manual VED + Verapamil... The VED is to be used 2 - 3 times per day for a short period only to begin gently stretching the affected area.... He said to NEVER force erections to last for long periods of time withe a base ring etc.... Only to use the VED for short stints.... Again -- this makes very good sense to me... I liked Dr Elist... I feel badly that so many have had issues with the implant... Again-- we did not even discuss penile implant....

Of course the VED + Verapamil should have / could have been done long ago & now the odds of a full recovery are greatly lessened due to the fully settled / stable condition of the scar tissue (divot).. I am going ahead with a really good VED + Verapamil... He also strongly recommends against intra-lesional injections stating at this very late stage that this could actually re-injure the scarred / plaque area and do further damage to surrounding tissues....

All this makes sense to me as I know he would have liked to do a surgery...
I mean lets face it.. He is in the business of doing these surgeries & they are quite expensive... So, the fact that he immediately said -- \"No Way\" on the surgery I feel good about that... He could have said to go ahead with surgery but he did not... He is adamnat against surgery for my specific case... Dr Elist had a very good demeanor and seemed extremely knowledgeable... He in no way tried to \"sell me\" on anything else... (implant etc.. ) We did not even discuss an implant nor would I ever consider a penile implant unless, of course, it was strongly indicated to help my condition PF condition which it is not...

I\'ll start treatment within a week using the VED + Verapamil & will post my progress on this thread... This is a long term treatment method which could take months and months and may not work at all... Ok.. thanks again for all the wonderful support and YES -- I would love to get a cell # so we may visit sometime... My 20 year old son is in the USAF & is coming home Friday...!! I havent seen him in many months so this will be a nice visit... I know this is a very long post.... Thanks for helping me understand my condition... I feel better about it now... Very Kindest Regards

@hope4more

You are so welcome friend. Intralesional injections have helped some men but are obviously more invasive. Some believe that they work on the \"swiss cheese\" principle (ie: lots of holes from needles = broken up plaque). The protocol I recommend is the iontophoresis combined with the SomaErectSTF. I hate to sound pompous, but I have more experience with PD than Dr. Elist. Dr. Elist\'s recommendations do sound appropriate however. There is a marked difference in congenital and acquired penile curvature; penile fracture being acquired, obviously. His instruction in use of the VED is also sound. Use the VED for no longer than 10 - 15 minutes maximum. I will send you a detailed protocol outlining the best theutic schedule for ultimate success. You want to avoid trauma to your Erect penis at all times. This also means not to use high pressure within the VED chamber. Do not purchase a cheap VED. You want multiple sized cylinders and the Osbon or SomaErect are your best bet.

I\'m happy that you are being reunited with your son. Being a father of three boys myself, I can only imagine the joy you must feel. You should be very proud to have a son that serves his country! I will PM you my personal cell phone number and help you in any way I can. Surgery is always a LAST resort! Dr. Egydio is the best in the world and I owe him my life for restoring my length and Girth after living with peyronie\'s for over 15 years. The protocol will take time. As I said, don\'t expect results for several months. You WILL make it through this! God bless you friend.

@hope4more and others...

Dr. Egydio\'s technique in unlike any other current surgical treatment for peyronie\'s. I\'d be shocked if Dr. Elist has even heard of it; though it has been practiced for some time. The method/procedure of correction by geometrical principles is actually named after him. It\'s called Egydio\'s technique. It is not a standard plication/nesbit procedure nor a standard grafting procedure. Even the 16 Dot technique is inferior in my opinion. Dr. Egydio specializes in dissection of the penis and knows it\'s inner workings better than you can imagine. He is a caring and brilliant surgeon that specializes in penile surgery and andrology. If you do not recover to a satisfactory level, I recommend you have a color doppler ultrasound of your penile arteries with an induced Erection and send Dr. Egydio the results. If everything looks good, he can fix you. Despite what Dr. Elist may think. Dr. Elist does not specialize in this field. Dr. Egydio made it his life. Specialization. That\'s what it\'s all about.

I wonder if Dr Egydio has experience with PF corrective surgery...? I\'ll research some on him tonight... He sounds like a true expert... am glad it worked out well for you.. thats great.. My penis was shortened some by the fracture... It also changed direction which are both also typical of naturally occurring peyronies... just spoke again with my son who\'ll be home Friday...!! thanks again for all the info... I posted on another thread today.. All this stuff is interesting... kind of addictive I guess... Regards

It is difficult to differentiate corporal fibrosis and fibrosis of the tunica albuginea due to penile fracture without a proper evaluation. Dr. Paulo Egydio has vast experience in dealing with penile fracture and the resulting scar tissue formation. He is a master of Urology and andrology. Peyronie\'s is typically a result of trauma to the Erect penis causing fibrosis of the tunica albuginea. Penile fracture falls into this category. Fibrosis of the corporal bodies can inhibit blood flow and the only solution is a penile prosthesis. If erections are good, then I would not worry about requiring an inflatable/rigid prosthesis. Again, a color doppler ultrasound of the penile arteries with an induced Erection will provide an excellent preoperative diagnosis. This will enable Dr. Egydio to better determine the best course of action. Here is a link to Dr. Egydio\'s website. Let me know if I can be of further help. I speak with Dr. Egydio at least once per week. He and I have become good friends. Take care hope4more!

cow girl the most common cause of peyronies...Fcuk the amount of times I have have had a bad landing I count myself lucky! thats off the list as favourite positions then!