TOPIC: Peyronie's Disease & PMMA Journal

Good news - it was just a (normal) reaction to the 5fu. The other injection sites were deeper and less got out into the skin. So, no FBG or infection or anything. He said he\'s seen much worse, and it\'s about average. My other (previously 5fu injected) nodules are dry and somewhat raw, but I knew that would happen. I just didn\'t think it would break open and ooze. He gave me Biafine samples for those. For this one, I just have to keep it clean.

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Great news. Man, you\'ve been thru the wringer on this round. So sorry. Hope all the worst is behind you.

If you are squeezing those nodules my advice is to stop!
It looks inflamed.

Thanks guys - yea it has been bad this round. I haven\'t been squeezing other than to feel if they softened or shrunk down. All the injected spots got red and dry, but I didn\'t know it could break the skin like that (plus this area got the smallest injection of all).
My Urologist thought it was herpes from the pic...lol...he\'s out of town right now. More good news - it\'s not herpes!!

Do you guys have any thoughts on how to prioritize the issues I have left. I have lost some perspective, since (a) it\'s my own Dick and (b) this round felt like a nightmare overall. So, I am just wondering what you think of the right side (the large deep nodules are on the left - these are more at the surface). You can\'t tell how hard they are, but 3 are harder than all the rest of them. There\'s actually 7 here, but I don\'t know if you can tell from the pic. One is on the underside. I could just focus on the hard ones rather than the visible ones.

BEFORE ROUND 3



8 WEEKS AFTER ROUND 3



I could wait more, have a derm cut one or two out (the most palpable ones) and see how that goes - which I am scheduled for already (c) wait 2 more months and go back to dr c...which means 3 months more abstinence...and another big expenditure with travel.

Has anyone had a linear scar on the shaft - do those heal well? I can get the two worst ones cut out - but I\'d rather not get a scar & just have Dr. c break these up if he can...though I am not sure if they can be broken up since they are at the surface level.

I have a linear scar. I\'d rather it wasn\'t there. It healed well and is flat, but ultimately you can\'t get around the fact that scar tissue isn\'t as elastic as normal skin, so you can always tell the scar is there. If I were you I\'d much rather have punch incisions made just above the nodules.

Personally, I think you should take a break from the forum and thinking about your penis in general. I know that\'s easier said than done, but I think for your own mental health it would be the best thing. I know you are finding it tough and keep mentioning you have no sex life at the moment, but there are quite a few members who have had to abstain from sexual activity for years due to dramatic deformation and big complications. I don\'t say that the belittle your issues, but you\'ve got to keep things is perspective. Ultimately, you\'ve got a few nodules, it\'s nothing compared with what you\'ve been through in the past with Peyronies. But the more the you focus on something like this, the worse it can become and it will end ruling your life, in the same way Peyronies probably did. I\'d just take a step back for a few weeks if I were you. I\'d avoid this place and try to stop continually touching the nodules. I don\'t think any harm can come from taking a break and then re-assessing things.

Thanks Hoodle. The derm said it would be a punch incision to the medical assistant, but then he said to me he\'d be doing it as a linear incision with a dissection...above 2 nodules. 1 is 5mm and 1 is 9mm. I have to clarify what he wants to do. How long did your scar take to heal? What was the size of it?

Do you know if Dr. C use heat to get rid of these lumps? There is a paper showing that people have \"melted\" the nodules by cauterization, but that seems very risky to surrounding tissue. Someone mentioned something like that as well...which would avoid the scars.

S.O. Said the said thing - and I\'ve been on here less... I am just trying to get all of the info I can because I am not getting it from anyone at Avanti Derma.

My linear incision was quite long. I took the stitches out after 10 days, but I wouldn\'t say it was healed for a month and then changed over the next year, as scar do. But it can\'t really be compared to your situation and it sounds like the incisions will be very small, so I\'d imagine will heal quickly and be barely noticeable in a relatively short period of time.

But I\'d wait it out if I were you. My biggest regrets surgery wise are not waiting long enough and rushing to get things fixed. CoolhandLuke waited and eventually his problems resolved. I think he had bigger Nodule issues that you do. I just don\'t think you gain any real advantage by trying to deal with this issue now, as opposed to in 3 months time. By then things might well have improved. It\'s not as if you are in any danger or your health is at risk by waiting. The main issue is that you seem keen to get back to having a regular sex life. That was what always spurred me to rush into to the next \"corrective\" surgery. But with the benefit of hindsight, I wish I\'d just waited and not done the vast majority of the surgeries I\'ve had.

Thanks Hoodle. Yeah, my main reasons for pushing the excision date up is that they\'re very different from prior rounds. The size and density of them is much more significant. Also, one Nodule was there 2 days post op - like it was freed from the implant that I had going in to R3 - and now it\'s just an old Nodule floating around in there that was always there (just below the PMMA or something before it was \"freed\"). I mentioned this one earlier, and sizemic said this happened to him, but his receded back. Mine is really prominent on the left. That is one of the two I want to excise since I don\'t think it is going anywhere. The idea is to do 2 conservative excisions, see how I heal, and continue to monitor things. I am concerned about the Nodule on the base, by my urethra, since the second round of 5fu didn\'t do anything like the first - but I am not going to get things cut open down there.

The nodules that are in the dermis concern me more because the immune system has more access to these vs. those that are below the fascia. So, if I can avoid leaving these in there very long, I would prefer that, since I think there\'s a theoretical risk of complications from PMMA in the dermis...(fbgs at 6 months onward). Plus, it looks like genital warts or some mystery penis disease.

My deglove scar healed relatively well, and that was deep and had tension...if I can just get the two major nodules out (it\'s hard to tell which is which from the pics - but there are 2 that are worse & more resistant than the others) then I\'d feel 1/2 way back to normal. I can probably have a normal sex life even with just those out.

Dude u were shooting urself with Kenalog? Where do u get that stuff? And how did u know how to do it?

Restoration wrote: Thanks Hoodle. Yeah, my main reasons for pushing the excision date up is that they\'re very different from prior rounds. The size and density of them is much more significant. Also, one Nodule was there 2 days post op - like it was freed from the implant that I had going in to R3 - and now it\'s just an old Nodule floating around in there that was always there (just below the PMMA or something before it was \"freed\"). I mentioned this one earlier, and sizemic said this happened to him, but his receded back. Mine is really prominent on the left. That is one of the two I want to excise since I don\'t think it is going anywhere. The idea is to do 2 conservative excisions, see how I heal, and continue to monitor things. I am concerned about the Nodule on the base, by my urethra, since the second round of 5fu didn\'t do anything like the first - but I am not going to get things cut open down there.

The nodules that are in the dermis concern me more because the immune system has more access to these vs. those that are below the fascia. So, if I can avoid leaving these in there very long, I would prefer that, since I think there\'s a theoretical risk of complications from PMMA in the dermis...(fbgs at 6 months onward). Plus, it looks like genital warts or some mystery penis disease.

My deglove scar healed relatively well, and that was deep and had tension...if I can just get the two major nodules out (it\'s hard to tell which is which from the pics - but there are 2 that are worse & more resistant than the others) then I\'d feel 1/2 way back to normal. I can probably have a normal sex life even with just those out.

Every time I read you responses to myself or Hoddle\'s insisting you take a step back, you seem to acknowledge our concerns, and then immediately dismiss them (probably unintentional) with what appears to be an over-analysis/over-obsession with every issue you have. You are doing a disservice to your psyche, and premature intervention with your penis may be doing more harm than good. Please take our advice, what\'s coming from myself, Hoddle, and others (PE Vets) is coming from a place of experience and sincerity.

Take a deep breath and give \"time\" a chance. Wait out the prescribed/recommended time and then see where to go from there. And I highly recommend taking a break from the forum. Time will only go by a lot slower if you continue to dwell on something you really don\'t have much control over at the moment.


p.s. your pic before Round 3 looks damn near perfect. hope is very, very real. just wait it out first, then see where to go from there

Kawkaw wrote: Dude u were shooting urself with Kenalog? Where do u get that stuff? And how did u know how to do it?

lol No I wasn\'t \"shooting myself up\". I went to a Dermatologist. It is Rx only. I work in a research hospital, and so I got in to see a doctor quickly and they took care of that, along with the 5fu. They have had other patients with lumps from sculptra and Radiesse so it wasn\'t a big deal. The only issue was that I didn\'t know that 5fu was going to cause a skin ulceration after the second treatment. The first round had no side effects, and my doctor said it mostly will just be red and flaky.

I recently did a google archer for \"efudex pictures\" and holy shit - I got off a lot easier than they all did! Efudex is 5fu cream for the face - for precancerous lesions.

SO - I am not sure how to reply... I mean, I don\'t feel negatively affected by things here. On the contrary, posts by bruno, smalljay, DWD, and jimmyjames make me feel better...especially because wade has ignored 90% of what I asked him in the last 8 weeks. I wanted to get Hoddle\'s advice about the scars because he\'s been through that. I\'m honestly not sure where the bad parts come in. I am not going to do what darkstaff did. I am not going to delete my whole journal in a crazy rage... I can\'t figure out what the issue is that you see - honestly. But, I will explain more below.

The small intervention I am doing at 9 weeks is going to address a Nodule that is over 6 months old and another one that sticks out the worst. I am leaving the rest alone - and giving it time, as you said. I think that plan is reasonable. The injections of 5fu and Kenalog are more effective if done early before the collagen forms...so that\'s why I did those at weeks 3-6. They didn\'t help much though, since we used a low/conservative dose. Wade wouldn\'t reply when i asked what dose dr. c uses.

One thing you should know - and I never really wanted to say - is that I have a PhD & work at a research hospital...so my way of analyzing a problem & approaching problems can look a little crazy from the outside. My dad is also a doctor, and I grew up with him endlessly searching through books and journals in the house to figure out how to treat patients who had complicated issues (rather than blowing them off like most doctors). We are very similar. This time, I am the patient...and my personality is the same as my dad...plus I am pretty \"focused\" (or crazy) considering I spent 2 years doing research & writing a dissertation on a topic nobody else would ever care about...but this time, we are talking about my penis - not some abstract topic. The border between neurotic obsession & drive to fix a problem is grey, I think. Maybe there is some of both, but I don\'t look normal to most people... even other PhDs have commented that I am a little obsessive. I often sit with the same data set for 12 hours and don\'t eat or move until the problem is solved... it\'s just how I can be. (I don\'t have aspergers). I think if we want to talk about \"abormal\" behavior here - maybe we should focus on people who are >6\" Girth and still unhappy...not on someone like me who had a big deformity and just wants to look normal...and isn\'t even really 5\" Girth.

And, it\'s 10x worse since Avanti Derma won\'t work with me. They won\'t even let me schedule an appointment (for unknown reasons). They won\'t put doctor C on the phone, they won\'t discuss the difference between excision and subcision to resolve the nodules. They won\'t give me the Kenalog or 5fu dose that they use. It\'s very very frustrating. They won\'t tell me how to determine the difference between a hematoma and a product clump. They wouldn\'t respond to my requests for a sample of metacrill that I could have had analyzed months ago. As far as treatment - their excuse was that it was too early to do anything and that I must have ruined the results with my aftercare (despite staying from tues to friday). Well, now we\'re at 9 week, so what is the excuse? They\'re mad I went to American doctors - ok - got it...well, second opinions aren\'t a foreign concept. Sorry I didn\'t want my penis to turn out like Jonthomas and can\'t jump on planes to TJ on a whim...and spend $1000 in travel fees for a Kenalog injection I can get down the hall.

You can see in my journal that I\'ve been going through penis problems since 2010...so I know my own body as well in this regard. I\'ve been through oral therapy, insanely painful injections of verapamil, flights all over the country to meet with peyronie\'s specialists, and ultimately plication surgery. In these cases, had I acted more quickly & aggressively - I probably wouldn\'t even be on this board because the damage wouldn\'t have been as extensive. Unfortunately, I didn\'t have the access to doctors back then that I do now. The idiot doctor I saw at my school\'s health service gave me vitamin E for the first year that I could\'ve been on Trental and potentially reversed the whole thing.

TL;DR: I am just sick of all this and want it to be over.

@Restoration

I wasn\'t suggesting that you were abnormal for over-analyzing or obsessing over things, it may very well be your strength in your discipline/field...what I was trying to suggest was that you shouldn\'t allow that same zeal overwhelm your progress moving forward (as it pertains to your penis). If being here does give you a sense of comfort or positive outlook, then I guess being here isn\'t so bad after all, but all I seem to read is anxiety & obsession between the lines...maybe it\'s just me?

And I get it, I\'ve seen so many complication threads (mostly from other procedure types) that I know the kind of stress, even anguish, some men have gone through. Even worse for you, Avanti has taken the atypical approach of seemingly turning you away, leaving you with this forum (and other physicians) as your only source for info. I get it, I get it all. Trust me. But what I\'m willing to wager a pretty penny on is that your zealous approach may be doing more harm than good, despite what you may perceive as \"feeling better\" by being here on a frequent basis.

I could be wrong, dead wrong, but threads like Darkstaff\'s & Coolhandluke\'s, plus numerous private messages from various members with their own issues, have lead me to believe that you have all the indications of of someone doing/thinking too much, too soon. I guess what I\'m trying to say is that I\'m speaking from experience. This isn\'t a knock on you brother, I just think myself & others are offering sincere advice.

If you wish to continue frequenting this forum, that\'s entirely your call, but my \"TL;DR\" of my past few posts have been something along the lines of \"take it easy.\" You\'re a forum donor and a thorough contributor and will always be welcome. Regardless of your approach & decisions going forward, good luck.