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TOPIC: My PMMA venture -- good, bad and the ugly

My PMMA venture -- good, bad and the ugly 6 years 10 months ago #1307096400

Hey guys
Dr Singh is the best Urologist ... I still recommend him. In 2016 I was diagnosed with Prostate cancer at the early age of 44 ... I had my prostate removed by an elite Dr in NYC ... I told him about the PMMA... and after the procedure, he told me that I had PMMA in my lymph nodes that he extracted. I have perm. ED now ... and even with removing my prostate, the cancer came back, so I went through 70.5 Gy or radation and I had 9 months of Lupton (hormone) therapy...

Still have a small bump (scar tissue) reminder on the base of my penis, and some scaring around the base ...

Would I do PMMA again?

hell no.

Hope everyone does their research before jumping into PMMA
Dark

I\'m sorry to hear that. Did they do prostate biopsy? If so, did they found PMMA specifically in prostate? Get well man!

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My PMMA venture -- good, bad and the ugly 6 years 10 months ago #1307098296

That's scary. Thanks for updating us, and all wishing you the best recovery possible.

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My PMMA venture -- good, bad and the ugly 6 years 10 months ago #1307104037

I'm just confused cause your last post from 2 years ago says,

'My surgeon explicitly said he DID NOT think my cancer was due to PMMA.'

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My PMMA venture -- good, bad and the ugly 6 years 10 months ago #1307105007

There are probably a couple of hundred members that have had either PMMA or Ellanse. Statistically that means about 25 of us will suffer from prostate cancer at some point. Every single one of those 25 will wonder if it was to do with PE procedure they had.

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My PMMA venture -- good, bad and the ugly 1 month 6 days ago #1308723343

airmailpuppet wrote:

Hey guys
Dr Singh is the best Urologist ... I still recommend him. In 2016 I was diagnosed with Prostate cancer at the early age of 44 ... I had my prostate removed by an elite Dr in NYC ... I told him about the PMMA... and after the procedure, he told me that I had PMMA in my lymph nodes that he extracted. I have perm. ED now ... and even with removing my prostate, the cancer came back, so I went through 70.5 Gy or radation and I had 9 months of Lupton (hormone) therapy...

Still have a small bump (scar tissue) reminder on the base of my penis, and some scaring around the base ...

Would I do PMMA again?

hell no.

Hope everyone does their research before jumping into PMMA
Dark

Are you alluding to PMMA causing your prostate cancer?


Hey everyone — hard to believe it’s been almost seven years since I last posted.

Just to clear it up first: I do not believe my prostate cancer was caused by PMMA directly.

Back when I got sick, I completely freaked out. My body went into overdrive — I developed AFIB out of nowhere and started bouncing between doctors, getting two or three CT scans with contrast all in the same year. Maybe that contributed, maybe not. I’ll never know for sure.

I remember on the old PhalloBoards 2.0, I got a few private messages from guys who had PMMA and were also having problems. One told me he’d asked Dr. Singh about a de-glove procedure, but apparently Dr. Singh doesn’t handle PMMA Removal anymore.

As for me, the only PMMA I can still feel is at the base of my penis — it’s stable and hasn’t changed in years. I can get to about 40% of my previous Erection with Cialis, but it’s not what it used to be.

My prostate cancer is currently under control. Looking back, I think it was more about lifestyle than anything else. But honestly, the mental stress and fear I went through weren’t worth it. A few others who reached out described similar symptoms — burning at the base, pain, anxiety — and it really takes a toll.

Would I do PMMA again?
No. Absolutely not.

Wishing everyone here good judgment and safety before making these decisions.

— Darkstaff

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My PMMA venture -- good, bad and the ugly 1 month 6 days ago #1308723345

  • melon
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Dear Darkstaff,

I was reading through your posts some days ago and was thinking about you. Happy you poked your head in the forum again, and even happier to hear things have not worsened, but have maybe gotten better. I don't have much to add, except thank you for posting, and that I hope God blesses you with a wonderful life. Know that people you have never met, and never though about, are out there somewhere in this world rooting for you.

-melon

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