Here\'s the update:
Derm -- looked at wound & as it has recovered from silver nitrate - I watched it like a hawk & applied bactroban, neosporin, celacyn, etc... and he said he really doesn\'t see signs of a biofilm. He read Prof Lemperle\'s email, but he thinks that it might have been hard for Lemperle to know for sure, given that it was only on email. He thought systemic antibiotics didn\'t pay - and topicals were working fine. He said NOT to have anymore surgery or excisions for at least 2-3 months on that site. His office and pathologist cannot do PCR.
Uro -- He\'s the one at the major teaching hospital. He hasn\'t seen me since he\'s booked up solid, but he saw the same pics Lemperle did. He thinks that excision will take care of the problem, and the biofilm won\'t return if it is there (though he hasn\'t seen post silver-nitrate pics since I hate to bog him down with emails & it takes him a while to get back). He didn\'t comment on my PCR question...but I checked with my insurance and the whole thing would be around $300 since I am at my out-of-pocket max already (good lord! It\'s definitely not all penis related, but about half was). To cancel would be $250 and would also piss him off...and he\'s one of the best male urologists around so I don\'t want to do that. I\'m thinking he could do some excisions of the other nodules and address this in person. I wish I could see him before the procedure, but it\'s just impossible with his schedule.
My urine drips again after I finish...which was happening when I had that base
Nodule pushing on my urethra that got
Kenalog + 5fu and shrunk. It almost seems like it increased in size over the past 3 months. Maybe he can take that out during the procedure...or the ventral
Nodule that also pushes on my urethra...so in a way, it\'s still worth doing. I just hope these freaking incisions CLOSE. Most of them did, but we didn\'t use the hyfrecator which can melt
PMMA (after the first one didn\'t close). Uro wants to use it...said he\'ll be very selective about just a few blood vessels...not just burn the whole area out... but that\'s easier said than done.
(Edit - I saw a wound care specialist who made things worse & then had the
Urologist do the excision. The details are continued here)