TOPIC: PMMA Nodule Info Thread

Thank you so much for posting this, Restoration. I am currently on week 4 of Round 2 post OP from Dr. C. I had about 9cc of 30% LinneaSafe. I currently have 6-7 nodules of various sizes and hardness.

thebeast1 wrote: I\'ve been working on pathology stuff with regards to my PhD for the last year. My original thought when I saw those pictures was \"holy fuck, that\'s a lot of PMMA in that tissue\"

Haha...that\'s basically what the pathologist said to my doctor.

That\'s exactly why I think Kenalog and 5fu failed.

30% is a LOT of PMMA once the carrier is gone. And, since you\'re left with open injection sites from the needle (that ooze for a few days) - this lets your body push the PMMA out right into those spots. All of my lumps were at injection sites.

The same process took place in R1 and R2, but I used metacrill. Something weird went on in this last round to push all the PMMA out like that and let it pool.

Thanks Digadick - I hope it works out. Keep us posted. 9cc is pretty conservative, so it should settle down, I think. I haven\'t been able to figure out what really affects these and why some go and some stay...but I think the concentration has something to do with it.

I have a small update.

At the time I had Radiesse (3 weeks ago now) - I had Kenalog injected into that big lump on the lower left. I knew it would be futile again. But, we tried 10% Kenalog with a super-thin insulin needle. There was a noticeable difference injecting the nodule with an insulin syringe because it was so thin that it passed easily through the mass...and then tiny tracks of kenalog could be laid down - rather than a big needle sort of plopping the kenalog in place with fierce resistance from the nodule. Anyway, 3 weeks later there has been some reduction in size of the mass - I think...unless I am still being confused by the radiesse camouflage (it wasn\'t really that much Radiesse, though).

The nodules aren\'t rocks, I have to remind myself... which I should\'ve known... but they feel like rocks. They are, of course, very porous balls of PMMA and your immune cells. I think the super-thin insulin needle was able to actually get to the of the mass and spread the kenalog crystals more diffusely than a larger needle. This is just my theory...or thought for now. Of course, I could be wrong, but who knows.

I wanted to put it out there...especially since it\'s pretty safe to put in 0.2 ccs of kenalog 10% even if it does nothing. I think manual disruption needs to follow kenalog injections (a few days later - not right away) - because otherwise the nodule has no \"reason\" to break up & not form again. So, I\'ve been squeezing that one lump a lot - and it may be going down.

I think the most reasonable battle plan w/ these things is to camouflage them with more product & then shrink them as much as you can...if they can be shunk




So, I\'m back to my R2 stats basically... after 10 months...

well I can\'t feel it, but congrats man that\'s the best it\'s looked from your other pics in a year.

(10% Kenalog with a super-thin insulin needle) Seems like I could do it myself. Did you watch it being done? Is there special technique? Thanks!. Also yours is definitely looking better

Also have you ever inquired about laser technologies for the Removal of nodules? Seems like it could do something.

I did it myself in this case. I already went through a dozen injections by docs (for the lumps) and years ago, for peyronies i must have had 20-30 injections of verapamil and other crap that did nothing (but I saw how all this was done). My doc once showed me how to inject caverject too - though I never used it long term. So, it wasn\'t that big of a deal to me.

Kenalog isn\'t over the counter though...not at least in the usa. Insulin syringes are cheap and you can buy them at cvs. You just have to make sure you don\'t get one that has a needle not too short or too long. They come in a few different lengths. 1/2\" would be ok. The longer it is - the more awkward the leverage is when you try to push in the solution. If you do inject your own Kenalog, you have to shake the bottle very vigorously prior to injection, put it in the syringe, and inject right away. Otherwise, the particles could start settling (if you leave Kenalog sitting out, it will settle pretty fast - the crystals go to the bottom and the saline is on top). You can get 0.3cc insulin syringes which also help with the leverage issue. It\'s less difficult with these super-thin needles. If you do inject, the best way would be deep into the core of the Nodule so it won\'t \"spill out\" too much and affect nearby tissue. But, keeping the quantity low will help reduce risks too. Then, I\'d say after injection, wait 3-5 days...then start squeezing the nodules on and off when you can. The Kenalog crystals will have settled in and started their work around 3-5 days and the saline will be gone (so that\'s why you don\'t want to massage right away, because you can push the Kenalog right out with the saline...by day 3-5, it\'s not going anywhere).

This is all just my thoughts on it, as a non-MD. I don\'t have much data backing me up. The risks are that you\'ll get a white / bleached out mark on the skin (usually that fades) or some Atrophy...though dr. C uses Kenalog 40 and has had neither issue. He injects it on the base of the nodules, I think. This is closer to the bucks fascia though...he does it to avoid surface Atrophy (and k-40 is really strong).

I asked about the laser, but my doctor said it sounded very risky to him - as he was concerned the PMMA could melt and block a blood vessel...and also 1 mm in the wrong direction, and I have a 3rd degree burn in my penis. That one paper from Italy wasn\'t enough to convince him it was doable. In fact, I believe another doctor wrote a response to that paper saying \"well, this is nice - but this can also go horribly wrong\".

And, thanks! Yeah it\'s better in person too - finally! Cialis 5mg daily seems to help as well, as it is forcing things to stretch and circulate more.

Hmm - I just typed a whole reply and it said you must enter a message to post.

Anyway, some docs say to massage...some say not to do it. Real self has a bunch of posts about it. I\'d be more concerned about disrupting Kenalog 40...that\'s a very strong concentration.

For most people, the first 6 weeks are just swelling, so that\'s why they say to wait - unfortunately, we both had really unusual situations.

Could the absorption rate of the PMMA carrier play a part in Nodule forming? Say carboximethylcelulose vs bovine collagen?

It\'s hard to say because people get lumps with Artefill too (in the face), and that is in bovine collagen. I think the % PMMA is the biggest risk. 10% rarely had these problems.

Just been doing a bit of reading up about PMMA and Dr C
You might might have already read this
This guy went to Dr C for PMMA now he\'s in big trouble

Makemeheal is a poorly moderated forum. If you can\'t sniff out bullshit, don\'t know what to tell you

Really, fair enough

For newer members here, I should point out that in the 5+ years we\'ve been around, there have been multiple instances of shill accounts and fake postings. Often times these boneheads would insinuate that the Moderators were people who worked at Dr. C\'s office and that the progress reports were fake and written by shills lol. Often times these guys would be connected to highly controversial doctors who don\'t have the best reputations here (a couple come to mind), and were likely pissed about it. So their strategy would be to either create a fake shill story about an amazing procedure in hopes to market using our forum, or alternatively they\'d attempt to sabotage the forum\'s credibility or Dr. C\'s credibility (under the assumption that we were associated) through posts like the one you see on Makemeheal.

For those who don\'t know, prior to PhalloBoards you had to get your Phalloplasty forum fill from a place called MyNewSize...and information there was sold to the highest bidder. If it were still around, fillers & such would hardly be spoken of and you\'ll see that the silicone implant was all the rave.Is it possible that account on Makemeheal is true? Possibly, but highly unlikely. They could have easily and more convincingly posted here with pictures and all. They chose not to. And if you review this forum\'s history, we DO NOT AT ALL censor any sort of bad outcome.

It\'s good for me to reiterate this history since newer members aren\'t likely going to what\'s up.

I just came across this and thought it was really interesting and might help people on here.
It was written by a woman who had PMMA injected in her face (Bellafill) and developed nodules and redness on her face where the PMMA was injected. She did some research and found that sugars and foods that cause inflammation were tied to her nodules. When she changed her diet, eliminated sugars and took antioxidants her symptoms greatly improved she said. She did not post a follow up but these are the supplements she listed that she was taking that caused her symptoms to improve. I will email her and see how she is faring, this was 4 months old.

The idea that inflammation causing foods could be tied to Nodule formation does not seem off base. I know collagen supplementation has been discussed on here, but not reducing the cellular inflammation that might be impacting Nodule formation. Cellular inflammation has been tied to dementia, so it can lead to serious negative outcomes.

I read an article a month ago that said the 3 most important supplements you need to take if you were going to keep it just to the essentials were Fish Oil, Magnesium, and D3 - all of which are on this list. I have also seen Alpha Lipoic Acid added to to this list as well.
Her routine was:
________________________

-2000 mg fish oil
-good quality multivitamin (taken as directed on the package)
-400 mg magnesium
-750 mg curcumin
-5000 IU vitamin D3
-1200 mg tart cherry capsules
-12 mg astaxanthin (I may reduce this a bit just because it\'s a VERY strong antioxidant and I could probably get by with a lower dose)

One more thing - if you drink sugary soda, stop or cut back drastically. I love it and used to drink a lot of it, but have realized that more than a little makes my face flare up.