The number of PMs I get now with people who have
PMMA nodules and other problems keeps going up. Of all these people, none will post in public. I don\'t understand why. I don\'t have all the answers - and people should know there are more patients with issues than just me and a handful of others.
I am getting tired of typing the same things over and over (that are also in my posts for the most part). Someone asked me about a mass at the base which was basically exactly what Smalljay\'s thread was about - and I already said what I thought to him in that thread. So, I emailed this guy a long explanation and then I also linked to that thread. Did I even get a \"thanks\"? No, \"Peace\" - you\'re welcome!
I\'ve been asked about my doc a few times. My
Urologist is highly unlikely to take on
PMMA patients. He only saw me because I was his patient since 2010 and he did my Peyronie\'s surgery. He has declined to do any further
Nodule removals on me. So, I can\'t recommend him to anyone as I do not see this being something he wants to continue doing. If you are in my exact city, then I will give you his name, but it\'s unlikely he\'ll do it & he\'s booked 3 months in advance anyway.
The main reconstructive urologists have already been listed such as Alter, Gellman,
Solomon (I think?), and others. Also, other users know more than me and have been involved with PE much longer...so post in publci.
Standard Advice on Treating
PMMA Irregularities
My advice is that you can go to a
Dermatologist who has experience in genital lesion & artefill
Removal and does not rush & will do a layered closure (with buried monocryl
Sutures and then nylon on top). Not many will have artefill experience. It\'s a difficult thing to find. All derms do genital lesion
Removal. I called the #1 Artefill complication expert in a major city (plastic surgeon) so he wouldn\'t touch the penis because he only does face work. So, I can\'t really call every doctor in the country for you. I went through the same process of calling and asking secretaries (fun) if someone would take a lump of Mexican filler out of my
Dick. The majority will not. Call and ask about artefill lumps first, then tell the doc in the office that it\'s in your penis.
Second, you can find a
Urologist who you will be 100% honest with, and then this
Urologist can \"cherry pick\" out the nodules, leaving scars like I have (potentially - probably not as bad) - or deglove your penis and take it all out if it is an extreme case. Again, not every
Urologist will do this either. You have to find a male sexual function specialist. Ask your Primary Care Physician or your insurance company to help you find one. I can\'t do it. How could I do it? If you want to tell me your city on PM, then I\'ll tell you if my doc is there.
And
Kenalog & 5fu are bullshit. I have yet to hear 1 person say they work. DMSO will soften the nodules, but it seems to be inconsistent from person to person. They got harder when I stopped, so maybe I should\'ve continued. I don\'t know. It was hard to use consistently since I was having surgeries and then it\'s just time consuming to ensure everything is clean, dry, etc... rinse / repeat...
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Anyway, I know it is very stressful to have problems after this procedure, but it\'s a little draining to be the oracle at
PhalloBoards who has to keep answering the same questions because people won\'t post publicly about the same problems I had. I am also irritated by certain users who had problems and then deleted all their posts or vanished. We need to get real about this procedure. The vanishing of posters, PMs from people with no posts, and hush hush behavior about problems is not a good thing for the PE scene. This board is VERY open to your problems, and you should take advantage of that fact because other boards are not (and historically have been very problematic due to that). Everyone needs a balance of the information...and the more, the better. I don\'t recall seeing much about nodules whatsoever before my first round. Now, it seems far more common...but if it\'s all in PMs, what good does that do?